We believe every child with a serious illness in the UK should have access to the knowledge, skills and experience required to meet their healthcare needs, no matter where they live. That’s why we create and fund specialist nursing posts within the NHS across the UK. We also believe that every seriously ill child received quality care. It is essential that children’s nurses across the UK are fully supported to develop the knowledge and skills necessary to deliver the best care possible. That’s why we provide professional support to our Roald Dahl nurses, to enhance their skills and foster innovation to improve services for seriously ill children.
There are over 50 Roald Dahl specialist children’s nurses who care for over 10,000 seriously ill children across the UK with conditions including blood disorders, acquired brain injury and a range of rare diseases each year. Our Roald Dahl nurses work directly with children and families, whilst providing a link between them and the consultant and hospital. They also work to invent new ways to improve the care that they receive through the Marvellous Nurse Inventing Room. We also support children and their families through our Marvellous Family Grants, which help families who face financial hardship cope when caring for a seriously ill child. Grants of up to £500 are available to help families to access help including counselling, art or music therapy sessions and access to specialist equipment.