The Sickle Cell Society is Britain’s only national charity for sickle cell disorders, an inherited haemoglobin disorder. The Sickle Cell Society was founded in 1979 by a group of patients, parents and health professionals who shared concerns about the lack of understanding of sickle cell disorders and the inadequacies of treatment. We aim to raise awareness of sickle cell disorders, push for improvements to treatment and provide advice, information and support to the sickle cell community.
We produce information resources about sickle cell disorders, and hold education seminars for patients and carers, as well as other awareness events. We provide a helpline service, and are working with Brent CCG to provide a more intensive advice and support service for Brent residents, and are hoping to secure funding to extend these services. We provide an annual children’s holiday to provide a respite break for children with sickle cell disorders and their families. We undertake lobbying work to draw attention to issues affecting the sickle cell community, and work with healthcare providers to ensure the best possible medical care is provided to patients.