Hearing the news that your child has a life-shortening condition and is likely to die young is completely devastating. For tens of thousands of families in the UK this is the reality. These children have very complex and unpredictable conditions and often need round the clock care, seven days a week.
Together for Short Lives is a UK wide charity that, together with our members, speaks out for all children and young people who are expected to have short lives. Together with everyone who provides care and support to these children and families, including all 54 children’s hospice services, we are here to help them have as fulfilling lives as possible and the very best care at the end of life. We can’t change the diagnosis, but we can help children and families make the most of their time together.